1st World Congress on Sickle Cell Disease - July 2010, Accra

On July 20-23, 2010 The Global Sickle Cell Disease Network partnered with The Children’s Hospital of Philadelphia, The Government of Ghana, The Sickle Cell Foundation of Ghana, and The Sickle Cell Disease International Organization (OILD) to hold the First Global Congress on Sickle Cell Disease. This landmark event took place in Accra, Ghana and commemorated the 100th anniversary of the first published paper on sickle cell disease.

The Congress welcomed approximately 800 attendees from around the world – clinicians, researchers, public health experts, government officials, sickle cell disease organizations, social scientists, patients, families, and myriad others interested and involved in easing the suffering caused by this disease. During dynamic, productive plenary and break-out sessions, experts shared their experiences and knowledge and worked toward making collaborative inroads on fighting the disease.

At separate Global Sickle Cell Disease Network Meetings, held before and after the Congress, approximately 100 clinicians and researchers who are engaged in the Network were able to meet and advance the agenda they established at the last Global Sickle Cell Disease Network Meeting in 2009 in Cotonou, Benin. The Network sessions showcased progress made on the development of specific research studies by five working groups, plans for establishing a comprehensive, dynamic website as the hub for scientific information and dialogue relating to Sickle Cell Disease, and next steps for establishing Clinical and Research Coordinating Centres within Africa.

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Making the Case for the World Sickle Cell Disease Federation

Presentation by: Isaac Odame, GSCDN, The Hospital for Sick Children, University of Toronto at the 1st World Congress on Sickle Cell Disease, Accra, July 2010.

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