Conference Agenda

Wednesday, March 14, 2012 - Thursday March 15, 2012
Atlanta, Georgia

Day 1 - Wednesday, March 14

2 – 4 p.m.   

Part 1: Plenary; Room: Grand Ballroom

Chair:

Kwaku Ohene-Frempong,
Children’s Hospital of Philadelphia, Philadelphia, USA and Sickle Cell Foundation of Ghana

2 p.m.

The Global Sickle Cell Disease Network: Progress and Plans
Isaac Odame, The Hospital for Sick Children, Toronto, Canada

2:20 p.m.

Global Sickle Cell Disease Network: Partnerships with International Agencies
Jacques Elion, Robert Debré Mother & Child University Hospital, Paris, France and 
Mohamed Cherif Rahimy, National Sickle Cell Disease Center, Cotonou, Benin

2:40 p.m.

Focus on Regional Networks: REDAC and CHARTA
Solomon Ofori-Acquah, Emory University, Atlanta USA

3 p.m.

Focus on Regional Networks: CAREST
Marvin Reid, University of the West Indies, Mona, Jamaica

3:20 p.m.

Discussion

3:40 p.m.   

Break

4 – 5 p.m. 

Part 2: Oral Abstract Presentations; Grand Ballroom

Chair:

Jacques Elion, Robert Debré Mother & Child University Hospital, Paris, France

Presentation Time

Abstract #

1st Author

Title

4 p.m.

GC-0-01

Frédéric B. Piel, Simon I. Hay, Thomas N. Williams

The Increasing Burden of Sickle Cell Anaemia: A Quantitative Approach

4:15 p.m.

GC-0-02

Nandakumar Menon
Vivek Nimgaonkar, Hari Prabhakar, Lakshmanan Krishnamurti

Feasibility of a Comprehensive, Integrated Medical Home for Patients with Sickle Cell Disease in a Remote Autochthonous Tribal Population in Southern India

4:30 p.m.

GC-0-03

Dipty Jain, Aishwarya Arjunan,  Lakshmanan Krishnamurti

Clinical Events in Individuals with Sickle Cell Disease at a Single Center in Nagpur, India: Is Sickle Cell Phenotype in India Truly Milder?

4:45 p.m.

GC-0-04

Sharon E. Cox, Julie Makani, 
Scott D Grosse, Frédéric B. Piel

Attributable Fraction of Under 5 Mortality from Sickle Cell Disease in Africa: Estimates for Tanzania

     

5 – 6 p.m.

 Part 3: Plenary; Room: Grand Ballroom

Chair

Jacques Elion,Robert Debré Mother & Child University Hospital, Paris, France

5 p.m.

International Partnerships for Program Implementation: Ghana
Kwaku Ohene-Frempong, Children’s Hospital of Philadelphia, Philadelphia, USA & Sickle Cell Foundation of Ghana

5:30 p.m.

Operational successes and challenges of a pilot newborn screening program in the Republic of Angola
Patrick McGann and Russell Ware, Baylor College of Medicine, Houston, USA

6 – 8 p.m.  

Reception and Poster Viewing


Day 2 - Thursday March 15

8 – 9:30 a.m. 

Part 4: Oral Abstract Presentations; Room: Grand Ballroom

Chair

Dipty Jain, Clinical Epidemiology Unit at Government Medical College, Nagpur, India

Presentation Time

Abstract #

1st Author

Title

8 a.m.

GC-0-05

Cyntia Cajado, Bruno A. V. Cerqueira, Wendell Vilas-Boas, Magda O. S. Carvalho, Marco Salvino, Angela Zanette,
Isa Menezes Lyra,  Mitermayer G. Reis,Marilda S. Goncalves

Polymorphisms of Toll-like Receptor, Myeloperoxidase and Fc Gamma Receptor IIa Genes in Children with Sickle Cell Anemia

8:15 a.m.

GC-0-06

Yutaka Niihara, Henry Macan,
James R. Eckman, Han Koh,
Melanie L. Cooper, Thomas R.Ziegler, Rafael Razon, Kouichi R. Tanaka,
Cage S. Johnson

L-Glutamine Therapy For Sickle Cell Anemia: Multi-Center Randomised Double Blind Phase II Study

8:30 a.m.

GC-0-07

Lesley King, Susanna Ali, Marvin Reid

Are we on Target? Mortality in Jamaica Children with SCD

8:45 a.m.

GC-0-08

Adekunle Adekile

Kuwait Sickle Cell Disease Registry

9 a.m.

GC-0-09

Kathy Chyjek, Suzanne van Meer,
Hawja Kim, Anastassios Koumbourlis,
Folasade Ogunlesi, Lewis L Hsu

A Disparity within a Disparity?  - Pilot Study Shows Higher Rates of Acute Chest Syndrome Correlate with Regional Lower Household Income and Asthma in Sickle Cell Disease 

9:15 a.m.

GC-0-10

Brenda F. Merriweather

Incidental Finding:  Adult Sickle Cell Readmissions are Reduced with the Implementation of the PAST (Proactive and Aggressive Sickle Cell Disease Treatment) Model

9:30 a.m.

GC-0-11

Ruby Khoury, Dima Karam, Sarah Keyrouz, Samar Muwakkit, Raya Saab,
Mariam Arabi, Fadi Bitar,
Miguel R. Abboud

The Characteristics and Cost of Care for Pediatric Patients with Sickle Cell  Disease at the Children's Cancer Centre of Lebanon

9:45 a.m.

GC-0-12

Kofi A. Anie, MJ Treadwell, A Grant, E Tetteh, M Lamptey, Asafo, S Ofori-Acquah,
K Ohene-Frempong

Developing a Counselor Training Program for Sickle Cell Disease Newborn  Screening in Ghana: Formative Research


 

10 – 10:30  a.m.

 Break

10:30 – Noon

Part 5: Workshop Plenary; Room: Berlin/Copeland/Foster

Chair:

Léon Tshilolo, Centre Hospitalier Monkole in Kinshasa, DRC and the Centre de Formation et d’Appui Sanitaire

10:30 a.m.

Natural History and Newborn Screening
Kwaku Ohene-Frempong, Children’s Hospital of Philadelphia, Philadelphia, USA & Sickle Cell Foundation of Ghana

10:45 a.m.

Infections in SCD
Stephen Obaro, College of Human Medicine, Michigan State University, USA

11 a.m.

Hydroxyurea Therapy in Low-Income Regions
Russell Ware, Baylor College of Medicine, Houston, USA

11:15 a.m.

Genetic and Environmental Factors that Govern Phenotypic Diversity
Adekunle Adekile, Faculty of Medicine, Kuwait University, Kuwait

11:30 a.m.

Final Charge to Working Groups and Discussion
All working groups should be focussed on key research needed to implement cost-efficient, evidence-based programs in developing countries, including what is needed in regional clinical and research centres.
Isaac Odame, The Hospital for Sick Children, Toronto, Canada

Noon – 1 p.m. 

 Lunch Break

1 – 3 p.m.  

Working Groups


Group 1:

Concourse South

Newborn Screening and Natural History

Group 2:

Acacia Room

Infections in SCD

Group 3

Concourse North

Hydroxyurea Therapy in Low-income Regions

Group 4:

Bernstein Room (lobby level)

Genetic and Environmental Factors that Govern Phenotypic Diversity

3 – 3:30 p.m.

Break


3:30 – 6 p.m.

Part 6 Final Plenary; Room: Grand Ballroom

Chair:

Alvin Zipursky, The Hospital for Sick Children, Toronto, Canada

3:30 p.m.

Summary of Group 1 Discussions
Kwaku Ohene-Frempong, Children’s Hospital of Philadelphia, Philadelphia, USA & Sickle Cell Foundation of Ghana

4 p.m.

Summary of Group 2 Discussions
Thomas Williams, KEMRI- Wellcome Trust Research Programme, Kilifi, Kenya

4:30 p.m.

Summary of Group 3 Discussions
Sharon Cox, Muhimbili Wellcome Programme, Dar es Salaam, Tanzania
Russell Ware, Baylor College of Medicine, Houston, USA

5 p.m.

Summary of Group 4 Discussions
Adekunle Adekile, Faculty of Medicine, Kuwait University, Kuwait

5:30 p.m.

Wrap Up and Next Steps
Isaac Odame, The Hospital for Sick Children, Toronto, Canada

6 – 8 p.m.   

 Joint Meeting with WISSH and Poster Viewing